My response to WHO

This is a short post I wrote within the few hours of seeing and waiting for the responses for this post, I will write a more in depth and evidence based post to correct any of my badly worded information as this was just an immediate response and based on a few sources I have been to in the past and my general knowledge about ASD and Aspergers. Also ignore my spelling errors and please don’t take offence to anything I say, we are all different and share our own thoughts and opinions 🙂 I promise to accept you if you accept me. 

I am applaud by the post from WHO, I have so much respect for the organisation but this is truly shocking. 

This is not entirely correct. There is no cure and there are zero treatments for the condition. ASD is a spectrum, whether you like it or not there is a lower end and a higher end that’s just how a spectrum works, many of us will be at completely different ends or very similar places. Just like NTs we are all different and all share different traits which can be impacted by environmental facts and genetics. Some of us don’t appear to have the stereotypical traits that seem to appear in many shows and films. Some of us are above average intelligence and some of us are under average, it’s a spectrum and the sooner you accept that the easier it will be for all of us. I swear if I have another person begins to speak slowly to me as soon as I mention I have Aspergers then I will throw my phone at them.

Many of us with Aspergers have above or average intelligence however some may have learning disabilities that impact the learning process especially if they do not receive the support they would like or need. 

Sometimes we are more likely to suffer from other conditions surrounding mental health and Hypermobility however considering this is a subject that we’re all still trying to learn and understand about things will always change and develop. 

From the NINDS they state, ” The term “spectrum” refers to the wide range of symptoms, skills, and levels of disability in functioning that can occur in people with ASD. Some children and adults with ASD are fully able to perform all activities of daily living while others require substantial support to perform basic activities. The Diagnostic and Statistical Manual of Mental Disorders (DSM-5, published in 2013) includes Asperger syndrome, childhood disintegrative disorder, and pervasive developmental disorders not otherwise specified (PDD-NOS) as part of ASD rather than as separate disorders. A diagnosis of ASD includes an assessment of intellectual disability and language impairment.” 

Later on I read this source from NAS, 

“People with Asperger syndrome see, hear and feel the world differently to other people. If you have Asperger syndrome, you have it for life – it is not an illness or disease and cannot be ‘cured’. Often people feel that Asperger syndrome is a fundamental aspect of their identity…People with Asperger syndrome are of average or above average intelligence. They don’t have the learning disabilities that many autistic people have, but they may have specific learning difficulties. They have fewer problems with speech but may still have difficulties with understanding and processing language.” I am aware that Aspergers and Autism differ in some or many ways depending on the individual.

I then read the link from the WHO and was even more angry at the lack of evidence and information, “ASDs begin in childhood and tend to persist into adolescence and adulthood. In most cases the conditions are apparent during the first 5 years of life.” this is not very informative, you are usually much younger and for women this can be extremely different. 

We tend to feel much much more than a NT and the reason why empathy may not be “present” is because we feel it so much stronger than we may be unable to show it in an appropriate way. The reason why our behaviours are so different may be because our brains work differently, this would make for a better caption than what the WHO put. None of us are broken and none of us need fixing, we need NTs to be more understanding and accepting, maybe when they do as much research into what it is like for us as much as we do for them then maybe we would get along a lot more. (excluding those of course who are lovely and understanding as again NTs are all different too and some may be understanding and some with ASD may not be understanding). We need a world where we can all be different and just except the fact they we are not computers we are people. 

Lastly there is NOTHING wrong with being Autistic or Aspergers, in fact thankfully to my traits that I was BORN with I have been able to be really successful academically, I got great grades with my eyes closed and I truly believe my traits of being Aspergers is to thank for this as I have an impeccable memory and learn new tasks in a quarter amount of time compared to a typical average NT. 

Also hello anti-vaxxers, I was born Aspergers and didn’t get it from a vaccine 😉

https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders

https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Autism-Spectrum-Disorder-Fact-Sheet

https://www.autism.org.uk/about/what-is/asperger.aspx

Please do research, I will always continue to research my diagnosis and try to understand myself as well as others ❤

Things to do during lockdown

I am aware so many people have posted about this topic but I think it’s great to get some ideas even if most ideas are recycled on different posts 🙂 

During these hard times I know there is a lot of tension and a lot of anxiety, but we have to try and find things that can help us distract ourselves.

There are so many different things to do during this time that can even help you learn new skills or even improve on skills you already have!

I personally like to work from home and it also gives me my own space that I can also study in, I have to admit I am very lucky that I work in IT as I am able to work remotely. Due to putting some of my tasks on pause as we’re no longer allowed in the office it leaves me more time to try out some other tasks in different areas of IT which is really cool. 

The different things I have been doing to keep myself busy vary, for starters I have decided to write this blog which even with no one really reading it, it still makes me feel like I’m socialising haha. I am looking at different resources to study for some professional qualifications which I know will help me in my current job and future tasks, I tend to include some studying into my work day as well!

I am playing a lot of animal crossing which came out on the 20th of March which may not be very productive but it certainly makes me happy and I think during this time doing things that make you happy is essential! Exercise is also very important, I am currently writing up a study and exercise plan for both me and my partner to get on with to ensure we continue to look after our health even while in lockdown! Exercise is so important for both mental and physical health, even if you really don’t feel like doing anything why not try and do some yoga, I love doing a bit of flow yoga or hatha. I find yoga enables me to stretch and think while building some nice muscle to ensure that when this is all over I can still walk 😉 

Me and my partner are also trying to dedicate a minimum of 30 minutes a day to go for a walk with the dog and just forget about work for a bit, which I find is more important for him more than me as I feel as though he works too hard sometimes 🙂 

I am also reading a lot, I think in the past few weeks I have read about 2 books and started another 2, my goal is a minimum of 15 books so along with the books I read in Jan and Feb I think I can get to 15! 

I am very lucky I live with others because I am able to socialise with my household if I really want to and also have my own space! This also means I can spend a lot of time, when I am bored, talking and chatting…and drinking lots of tea and coffee. 

As for a lot of other people I know some of these things are unavailable or just not possible at the moment but there are plenty of things that you can maybe try that can make you feel a bit less alone or bored. 

Some of these ideas may not be for you so please don’t do anything that you’re not comfortable with! 

I find that some form of exercise is great, it can keep you fit even if you have to work out indoors and can add something to your day, produce some nice happy hormones and just overall hopefully make you feel happier! Below I will link some cool sites that I use for both yoga and indoor exercises with little to no equipment! Make sure you look after your mind as much as your body.

Home – Day 1 – Recognize  |  30 Days of Yoga With Adriene

The Best 15-Minute Beginner Workout — No Equipment Needed | Class FitSugar

Home Exercises for Kids

Read, learn and improve your skills, maybe you’ve always wanted to learn a language or a new skill, why not try to use apps or online educations sites such as Babbel and Udemy! I use Udemy for both personal and work reasons, I find they have such a crazy selection of courses that are really affordable and if you don’t enjoy it when you start you are able to get refunded and maybe try another one! I am currently learning some skills within the Linux area and Cognitive behaviour therapy sector (CBT). I have a big passion around Psychology and Behavioural subjects, I am always looking at ways to improve my understanding of people, being Aspergers I also do lots of research on other who have ASD so I can better understand myself and others in the community. 

There are lots of things to do during lockdown but just remember to be safe and look after yourself and other people who may be vulnerable in the community. I have only suggested a few things that I have seen other people doing including myself! But please look after yourself, stay safe and try to stay positive, we’re all in this together ❤ 

Some good sources that I like-

Study-

https://uk.babbel.com

https://www.udemy.com

Exercise and relaxation- 

https://www.youtube.com/user/yogawithadriene

https://www.youtube.com/user/popsugartvfit

20 Minute Mindfulness Meditation for Being Present / Mindful Movement

Creative- 

https://www.youtube.com/user/GeniunelyMoriah

Simple Steps to Learn a New Skill

https://www.goodreads.com

Lockdown?

Yesterday the island where I live finely decided that a lockdown was best, I think I can speak for a lot of others living here; it was something that we as the public have been shouting about for a while. I’m not saying we should all panic, I think we all need to work together to ensure that those in our community who are at risk are taken care of. I think so far I have seen many people happy with the lockdown however, we must remember that hundreds have lost their jobs and some businesses may never open again. This keeps me awake at night; I am so lucky and thankful for my situation and I really hope those who need it gain the support and care soon.  

Before lockdown was enforced I was already working from home and avoiding contact with my family members and the public. This isn’t really much of a change for someone like me haha. I have always been rather antisocial and enjoyed spending time alone or indoors. However, I do love walking and I have to admit I’m rather nervous about going for walks so soon after the announcement.   

There are so many problems that will arise from this change such as mental health, many places around the world have had this implemented much longer than us and you can clearly see the affects of it already. We are about a week and a bit behind the UK, roughly. I am seeing more and more options to support people during this hard time in regards to online chats and counsellors which is a massive positive. I personally feel as though this whole change will continue to impact our lives and change the way we view the world even after “it” is “over”. Maybe not in an entirely negative but hopefully it’ll help people remember to wash their hands properly…    

I have been communicating a lot on some ASD and Asperger groups online lately and have seen an abundance of comments and posts about being bored, lonely and general struggling during this time. Not everyone who is on the spectrum has the same traits. I for one love being alone and when it comes to learning without interruption, oh I’m in heaven. I have a wonderful quote from Tony Attwood that just really sums up the fact at this time, for once I am very thankful about being Asperger’s, “Being alone can be a very effective way of calming down and is also enjoyable, especially if engaged in a special interest, one of the greatest pleasures in life for someone with Asperger’s syndrome.” I am aware that some of us truly love social interaction and are good at it (some may enjoy it however find themselves struggling to be accepted) I think this is a wonderful trait but at this time I really do feel for all those in the world whether you’re Asperger’s or not. 

Our medical experts, retail workers and general essential workers are still working on the front line to give us support, medical advice, medicine, food, water, electricity and so much more. Even those of you who work from home are still giving something back to the community, I hope everyone realises no matter how small of an effort you make it will always matter and impact those around you. Both of my parents are essential/critical workers and unless they become unwell they must continue to work, I have so so much respect for those brave workers who continue to work within the public. Nurses will continue to work first hand with those infected and just wow, you are all truly heroes. I am probably forgetting a lot of professionals here, or I have just not mentioned some and I apologise but I really hope everyone stays safe during these hard times, it will get better. 

For me this time has provided me with opportunities to move back into a workplace I previously worked for and has allowed me to gain more general knowledge in the areas I will work within. It is also giving me more time to expand my knowledge in particular fields of study that I think will improve my understanding of the workplace and my future goals. My “Special interests” usually revolve around reading and learning new things which enables me to learn new tasks much quicker and smoother, this has really been a highlight for me at this time. I wish to expand my knowledge in both the technical and psychological fields and this time deems perfect. For those who are struggling, I am so sorry, I really hope you find something that makes you feel a bit more comfortable and continue to be strong and stay home as this really will enable our community to stay safe. 

I hope you are all doing well, let me know how you’re coping with the lockdowns where you are? My traits allow me to handle the situation in a certain way, but we are all different so remember to check in with your loved ones and yourself! You matter just as much 🙂